Members & Activities

The Long Eaton and District Branch has in excess of 120 members.  We still have a number of founder members attending the meetings and sitting on the committee, but welcome new members every month.

Here are some stories about just a handful of our members:

Sue Brown or in her own words "The Mad Woman"

Sue was diagnosed in 1993, 20 years ago. She held the position of Welfare officer for the branch for 10 years and is now retired from that post.

Sue has raised £10,000 for research by doing some exciting things:

·         Jumping from aeroplane at 14,000 ft,

·         Wing walked at Waddington Air show.

·         Wing walked but standing on a plane  doing a loop the loop

·         Bungee jumped from the famous Hacker Bridge

·         Jumped from the highest building in the Southern hemisphere

·         Tied to a rocket hauled up a canyon and then released

These are but a few of the exciting thing that she has got up to.  Why does she do it?

Sue does it to show people with this illness it’s not the end of the world and that you can still do exciting things, Sue says she is not afraid of anything, except Spiders!

Sue dislikes people feeling sorry for her and would love to be able to make a cake, but as yet, they come out of the oven flat as pancakes and even the birds won’t touch them!

Sarah Sedgwick

Sarah joined the Branch two years ago and was co-opted on to the committee as Newsletter Editor.  Sarah's Mum was diagnosed with Parkinson's 14 years ago and lives in Devizes, Wiltshire.  So whilst Sarah wanted to get involved it was a bit far to travel to the Devizes Branch every month!  

Sarah has completed some fundraising events the most onerous being a 60km walk (37 miles) in one day over the South Downs and the more leisurely Calke Abbey Walk for Parkinson's.

Sarah edits this website, so she always wants to hear from you with interesting news, views and photographs.

Join us

Contact us today if you are interested in finding out more about the Long Eaton and District branch either as a member or as a volunteer.

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